Thursday, February 27, 2014

Physics is enjoying a golden age - Washington Post


Each of the GPS satellites that allow me to navigate to a new restaurant carries an atomic clock that needs to be accurate in order to triangulate the speed and position of my moving car. But there are a couple of problems. Einstein’s Theory of Special Relativity predicts that clocks hurtling through space at satellite speed will appear to tick more slowly than earthbound clocks by about 7,000 nanoseconds each day (a nanosecond is a billionth of a second). His Theory of General Relativity, on the other hand, predicts that clocks farther from a massive object (the Earth), will advance faster than clocks on the ground, in this case by a little more than 45,000 nanoseconds.
If the GPS system fails to compensate for the 38,000-nanosecond difference predicted by an eccentric German physicist, errors in global positioning would increase by about 6 miles each day. In 23 days, my restaurant in Washington, D.C., might mistakenly show up in Philadelphia. This is the oddness of modern physics invading the everyday world.

Monday, February 24, 2014

African Americans and cancer disparities - University of Michigan

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While researchers have not been able to pinpoint a single cause for cancer, we know that several variables are involved. Our age, race, genetics, lifestyle and environment can influence our chances of developing it. Some of these variables such as race can cause differences or inequalities known as cancer disparities. For example, according to the U.S. Department of Health and Human Services (DHHS), African Americans have the highest cancer death rate of any racial group for all cancers combined. This is a huge disparity and one that is not experienced by other ethic groups to quite the extent it is in African-America individuals.
There is no clear data on why these disparities exist, but just like cancer causes, they are believed to be the result of a variety of factors. These may include
  • access to care
  • early detection/screening
  • education
Organizations like the DHHS are working to reduce these differences on a national level. Our Cancer Center’s Minority Outreach Initiative is working on this at a local level in the Southeast Michigan community.
Some of the cancers that are most common in African Americans include: female breast cancer, colorectal cancer, prostate cancer and lung cancer. Learning to be proactive by seeking health care rather than waiting for a problem to arise, knowing if you have a family history of cancer, and taking advantage of early screening/detection programs can help reduce cancer disparities. For those who need to become established with a health care provider, the American Board of Medical Specialties can provide the names of specialists in your area.
Screening is looking for cancer before symptoms appear. Lack of screening is believed to be one of the reasons for disparities in cancer care especially among African-Americans and minorities. Knowing your own risk factors and family history (if any) is important for cancer screening.
Let’s take a closer look at the screening for each of the cancers mentioned above:
  • Female breast: Experts recommend a screening mammography every year starting at age 40. The CDC’s National Breast and Cervical Cancer Early Detection Program provides free screening for breast cancer to low-income, uninsured, and underinsured women across the United States.
  • Colorectal: Experts find that regular screening beginning at age 50 is important in detecting colorectal cancer early, when there is the greatest chance for a cure. There are several screening tests for colorectal cancer, so it is important to speak with your health care provider about what colorectal cancer screening option is best for you. The Michigan Colorectal Cancer Early Detection Program (phone 517-373-3740) is a free screening program offered through the Michigan Department of Community Health and is for those who are 50-64, low income, and uninsured or underinsured.
  • Prostate: Both the PSA, or prostate screening antigen blood test, and a digital rectal exam are suggested screening tests for prostate cancer. However these tests may not be appropriate for all men. The National Comprehensive Cancer Network (NCCN) recommends that by age 40, men have a discussion with their doctor about the risks and benefits of prostate cancer screening.
  • Lung: Lung cancer screening is currently recommended only for “high risk” individuals. High risk is defined as anyone ages 55 through 80, who has a 30-year history of smoking at least one pack a day, or who has quit in the past 15 years. The screening is done through a low dose CT scan. Our Cancer Center offers a dedicated Lung Cancer Screening Clinic.
Along with screening, community-based cancer education can help reduce these disparities. It is in fact one of the goals of many outreach programs, including ours. There may be cancer outreach programs in your community. You can find out by checking the events section of your local newspaper, or calling your local hospital or community center. If you are not sure where to start or want to speak to someone, our Cancer Answer Line is ready to assist at 1-800-865-1125 (Monday-Friday 8 a.m.-5 p.m. EST).

Take the next step:

  • Learn the cancer facts and figures for African Americans from the American Cancer Society
  • Read the prostate cancer screening guide (PDF) for African Americans by the Centers for Disease Control and Prevention

SusanDaron no caption

The Cancer AnswerLine™ nurses are experienced in oncology care, including helping patients and their families who have questions about cancer. These registered oncology nurses are available by calling 800-865-1125 Monday through Friday, 8 a.m. – 5 p.m. Your call is always free and confidential.


Cancer center-informal-vertical-sigThe University of Michigan Comprehensive Cancer Center’s 1,000 doctors, nurses, care givers and researchers are united by one thought: to deliver the highest quality, compassionate care while working to conquer cancer through innovation and collaboration. The center is among the top-ranked national cancer programs, and #1 in Michigan for cancer patient care. Seventeen multidisciplinary clinics offer one-stop access to teams of specialists for personalized treatment plans, part of the ideal patient care experience. Patients also benefit through access to promising new cancer therapies.

Saturday, February 22, 2014

Picturing Hunger in America - PBS News


Hunger Through My Lens: Photographs of Hunger in Everyday Life
Elizabeth Deak (left) talks about her work with “Hunger Through My Lens,” a project sponsored by Hunger Free Colorado.
http://www.pbs.org/newshour/art/picturing-hunger-in-america/

Hunger Through My Lens” has a dual mission: to empower people who are living in poverty and to promote awareness about hunger issues. Sponsored by the non-profit group Hunger Free Colorado, the program gives digital cameras to food stamp recipients and asks them to chronicle what it’s like to be hungry in America.
So far, 15 women — who come from all walks of life — have participated in the pilot program. Over the months, they’ve formed a “sisterhood” of sorts, supporting and encouraging one another. One woman is a former paralegal who suffers from autism. One is a family practice physician. A third woman is HIV-positive and has struggled with chronic homelessness. A fourth just got off government assistance and is now an executive director of a local non-profit organization.
Their photos are as diverse as the women themselves. At first glance, many of the photos don’t necessarily appear to depict hunger; one shows two driver’s licenses, another a bent fork. But the stories behind the photos tell about the complications and suffering that poverty brings. The work has been on display in Denver libraries, churches, coffee houses and even the Colorado Capitol. At each exhibit opening, the women come to talk about their personal stories.
Hunger Through My Lens“This issue is hard to talk about. There’s so much stigma attached to hunger in America,” said Kathy Underhill, director of Hunger Free Colorado. Underhill says she has seen a real blossoming among the women and is so proud of them for speaking out, because their photos and stories help break down negative stereotypes.
“Everyone has this archetype of who’s hungry in America and it’s usually the gentleman on the side of the street with the cardboard sign,” Underhill said. “And the truth is, you’re most likely to live in a hungry household in Colorado if you’re between the ages of 0 and 5. You’re most likely to be hungry if you’re an older adult or a single woman. So it’s incredibly important for folks to understand that hunger can impact anybody.”

“The stress of $50 a week — $2.40 per person, per day for one mom, two kids.”
Photo by Andrea Fuller
Photo by Andrea Fuller
“After I lost my job, grocery shopping became extremely stressful. Even just the act of making the shopping list caused stress, knowing I wouldn’t be able to afford many of the items on the list. One morning, I saw that my nephew had written ‘I love you’ on my grocery list, and just that small notation made me feel so much better.”

“November: SNAP Cuts and Garden Frozen”
Photo by Robin Dickinson
Photo by Robin Dickinson
“My family relies on two main sources for food: our garden and SNAP benefits. Last November it seemed especially cruel that SNAP benefits were cut at the same time winter frost killed off the last of our tomatoes.”

“Balancing Act”
Photo by Elizabeth Deak
Photo by Elizabeth Deak
“This photo represents a couple of things for me. First, you can’t eat with a broken fork just like people in this country can’t eat because of a broken system. But the photo also symbolizes the delicate balancing act that people in poverty have to maintain– finding employment, housing, transportation and food.”

“The Land Is Plentiful, So Why Isn’t Access?”
Photo by Ashley
Photo by Ashley
“I took this photo of a community garden in Denver. This small plot of land helps provide food for people who don’t have enough money to buy fresh produce. There is so much land available in this country for gardens like this. Why don’t more people have have access to it?”

“AIDS. Food is Medicine Too”
Photo Courtesy: Sallie
Photo Courtesy: Sallie Campbell
“I have AIDS. And I’ve discovered that my medicine doesn’t work if I’m not eating right. The driver’s license photo on the left was taken in September 2007 when I wasn’t eating well. The photo on the right was taken in August of last year. Look how much better I look when I’m eating well! Food feeds not just the body but the soul.”

“Reversed Disparity”
Photo Courtesy: Caroline Pooler
Photo Courtesy: Caroline Pooler
“I took the photo of the beautiful bananas in a large, chain supermarket in a nice neighborhood. The other bananas, which were over-ripe and more expensive, were in little corner bodega in a low-income neighborhood. It struck me that people living in poverty have no chance of eating nutritionally with that kind of disparity.”

“Still Waiting”
Photo by Victoria Asalp
Photo by Victoria Asalp
“Poor people encounter signs like this every day. They wait in line to hand in paperwork for assistance. They wait in line at food banks, at soup kitchens. Often it feels like too much of my life is spent just waiting.”

Watch the full PBS NewsHour report about “Hunger Through My Lens:”

Thursday, February 20, 2014

Chester Eastside Ministries Charts a New Course - The Swarthmorean Newspaper

(Re-printed from an article which appeared in The Swarthmorean Newspaper)
In January 2014, Chester Eastside Ministries will enter a new phase in its long history of service to the people of Chester as it becomes an independent nonprofit organization. For many years as a minis-try of the Presbytery of Philadelphia, Chester Eastside has offered essential services, including emergency food and clothing, education and cultural enrichment programs for the young and the old, spiritual support and advocacy for social justice. In recent years, however, as Presbytery itself has faced economic challenges, financial support has declined. About 70 percent of CEM’s revenue now comes from other sources, including area churches.

The board of Chester Eastside last spring began a deliberative process to chart its future. It is currently engaged in long-term strategic planning so that it can pursue its mission and develop its potential in new ways. But early this fall, the board had to turn its attention to an immediate crisis: CEM’s aging building was found to have major structural problems, moving the Trustees of the Presbytery to close it for safety reasons, pending further assessment.

Reacting quickly, Chester Eastside found a home for many of its programs at St. Paul’s Episcopal Church, a block and half from the old building. The Food Pantry and the After-School Program are already up and running. The office has also moved there. The Adult Education/GED Program will also reopen soon. The Parents First Program will begin in January and the Clothing Program is uncertain until a storage area is found.
Last Fall, Chester Eastside and the Presbyterian Community Ministries of the Delaware Valley (PCMDV), the body that has overseen Presbytery’s urban ministry programs, agreed this fall to terminate their relationship. PCMDV will allow Chester Eastside to continue to use its tax-exempt status, as well as its registration with the Pennsylvania Bureau of Charitable Organizations, while Chester Eastside applies for its own 501(c)3 status. Shortly thereafter, the Presbytery trustees approved the separation, agreed to provide payroll and other back office services through 2014, and allocated $69,000 in support for 2014 (less than the $100,000 in 2013, but more than expected). The trustees also urged CEM to find a permanent facility in the Eastside community.
Working with Jim Leming (a Swarthmore Presbyterian Church member) as an independent consult-ant, and inviting many stakeholders in to the conversation, the Chester Eastside Board continues to develop its new strategic plan that will reflect a continued commitment to ministry on the east side of Chester, its new physical circumstances, and a push to expand its circle of support.
Recently, Chester Eastside received a boost from a new supporter. The Philadelphia Phillies pledged $7,500 and invited CEM to the team’s annual charity dinner on December 16, where they further promote the programs of their non-profit guests. They have also received new grants from Boeing and other area organizations.
Mert Hinkle has been instrumental in helping them get some of these grants. We continue to support Chester Eastside and hold them in our prayers as they take new steps in the year ahead.

Rev. Warren would also like to personally thank Chambers Presbyterian Church, Princeton Presbyterian Church, Swarthmore Presbyterian Church, Wallingford Presbyterian Church and all of our partner churches.

Beth Israel Names Chester Eastside Ministries and Rev. Warren 'Friend of Community' - Delco News Network




Saturday, February 15, 2014

The Middle Class Is Steadily Eroding. Just Ask the Business World.- NY Times


















G.E. Appliances' fastest-growing brand is its Café line of refrigerators and other appliances, which is directed at the high end of the market. Angela Shoemaker for The New York Times
 
 
In Manhattan, the upscale clothing retailer Barneys will replace the bankrupt discounter Loehmann’s, whose Chelsea store closes in a few weeks. Across the country, Olive Garden and Red Lobster restaurants are struggling, while fine-dining chains like Capital Grille are thriving. And at General Electric, the increase in demand for high-end dishwashers and refrigerators dwarfs sales growth of mass-market models.
 
As politicians and pundits in Washington continue to spar over whether economic inequality is in fact deepening, in corporate America there really is no debate at all. The post-recession reality is that the customer base for businesses that appeal to the middle class is shrinking as the top tier pulls even further away.If there is any doubt, the speed at which companies are adapting to the new consumer landscape serves as very convincing evidence. Within top consulting firms and among Wall Street analysts, the shift is being described with a frankness more often associated with left-wing academics than business experts.

“Those consumers who have capital like real estate and stocks and are in the top 20 percent are feeling pretty good,” said John G. Maxwell, head of the global retail and consumer practice at PricewaterhouseCoopers.
 
In response to the upward shift in spending, PricewaterhouseCoopers clients like big stores and restaurants are chasing richer customers with a wider offering of high-end goods and services, or focusing on rock-bottom prices to attract the expanding ranks of penny-pinching consumers.
“As a retailer or restaurant chain, if you’re not at the really high level or the low level, that’s a tough place to be,” Mr. Maxwell said. “You don’t want to be stuck in the middle.”
 
Although data on consumption is less readily available than figures that show a comparable split in income gains, new research by the economists Steven Fazzari, of Washington University in St. Louis, and Barry Cynamon, of the Federal Reserve Bank of St. Louis, backs up what is already apparent in the marketplace.
In 2012, the top 5 percent of earners were responsible for 38 percent of domestic consumption, up from 28 percent in 1995, the researchers found.
 
Even more striking, the current recovery has been driven almost entirely by the upper crust, according to Mr. Fazzari and Mr. Cynamon. Since 2009, the year the recession ended, inflation-adjusted spending by this top echelon has risen 17 percent, compared with just 1 percent among the bottom 95 percent.
 
More broadly, about 90 percent of the overall increase in inflation-adjusted consumption between 2009 and 2012 was generated by the top 20 percent of households in terms of income, according to the study, which was sponsored by the Institute for New Economic Thinking, a research group in New York.
 
The effects of this phenomenon are now rippling through one sector after another in the American economy, from retailers and restaurants to hotels, casinos and even appliance makers.For example, luxury gambling properties like Wynn and the Venetian in Las Vegas are booming, drawing in more high rollers than regional casinos in Atlantic City, upstate New York and Connecticut, which attract a less affluent clientele who are not betting as much, said Steven Kent, an analyst at Goldman Sachs.
Among hotels, revenue per room in the high-end category, which includes brands like the Four Seasons and St. Regis, grew 7.5 percent in 2013, compared with a 4.1 percent gain for midscale properties like Best Western, according to Smith Travel Research.
 
While spending among the most affluent consumers has managed to propel the economy forward, the sharpening divide is worrying, Mr. Fazzari said.
 
“It’s going to be hard to maintain strong economic growth with such a large proportion of the population falling behind,” he said. “We might be able to muddle along — but can we really recover?”
 
Mr. Fazzari also said that depending on a relatively small but affluent slice of the population to drive demand makes the economy more volatile, because this group does more discretionary spending that can rise and fall with the stock market, or track seesawing housing prices. The run-up on Wall Street in recent years has only heightened these trends, said Guy Berger, an economist at RBS, who estimates that 50 percent of Americans have no effective participation in the surging stock market, even counting retirement accounts.
 
Regardless, affluent shoppers like Mitchell Goldberg, an independent investment manager in Dix Hills, N.Y., say the rising stock market has encouraged people to open their wallets and purses more.
“Opulence isn’t back, but we’re spending a little more comfortably,” Mr. Goldberg said. He recently replaced his old Nike golf clubs with Callaway drivers and Adams irons, bought a Samsung tablet for work and traded in his minivan for a sport utility vehicle.
 
And while the superrich garner much of the attention, most companies are building their business strategies around a broader slice of affluent consumers.
 
At G.E. Appliances, for example, the fastest-growing brand is the Café line, which is aimed at the top quarter of the market, with refrigerators typically retailing for $1,700 to $3,000.

“This is a person who is willing to pay for features, like a double-oven range or a refrigerator with hot water,” said Brian McWaters, a general manager in G.E.'s Appliance division.
 
Sears and J. C. Penney, retailers whose wares are aimed squarely at middle-class Americans, are both in dire straits. Last month, Sears said it would shutter its flagship store on State Street in downtown Chicago, and J. C. Penney announced the closings of 33 stores and 2,000 layoffs.
 
Loehmann’s, where generations of middle-class shoppers hunted for marked-down designer labels in the famed Back Room, is now being liquidated after three trips to bankruptcy court since 1999.
The Loehmann’s store in Chelsea, like all 39 Loehmann’s outlets nationwide, will go dark as soon as the last items sell. Barneys New York, which started in the same location in 1923 before moving to a more luxurious spot on Madison Avenue two decades ago, plans to reopen a store on the site in 2017.
 
Investors have taken notice of the shrinking middle. Shares of Sears and J. C. Penney have fallen more than 50 percent since the end of 2009, even as upper-end stores like Nordstrom and bargain-basement chains like Dollar Tree and Family Dollar Stores have more than doubled in value over the same period.
 
Competition from online giants like Amazon has only added to the problems faced by old-line retailers, of course. But changes in the restaurant business show that the effects of rising inequality are widespread.
 
A shift at Darden, which calls itself the world’s largest full-service restaurant owner, encapsulates the trend. Foot traffic at midtier, casual dining properties like Red Lobster and Olive Garden has dropped in every quarter but one since 2005, according to John Glass, a restaurant industry analyst at Morgan Stanley.
 
With diners paying an average tab of $16.50 a person at Olive Garden, Mr. Glass said, “The customers are middle class. They’re not rich. They’re not poor.” With income growth stagnant and prices for necessities like health care and education on the rise, he said, “They are cutting back.” On the other hand, at the Capital Grille, an upscale Darden chain where the average check per person is about $71, spending is up by an average of 5 percent annually over the last three years.

LongHorn Steakhouse, another Darden chain, has been reworked to target a slightly more affluent crowd than Olive Garden, with décor intended to evoke a cattleman’s ranch instead of an Old West theme.
 
Now, hedge fund investors are pressuring Darden’s management to break up the company and spin out the more upscale properties into a separate entity.
 
“A separation could make sense from a strategic perspective,” Mr. Glass said. “Generally, the specialty restaurant group is more attractive demographically.”
 
http://www.nytimes.com/2014/02/03/business/the-middle-class-is-steadily-eroding-just-ask-the-business-world.html?action=click&contentCollection=Politics&module=MostEmailed&version=Full&_r=0

Wednesday, February 12, 2014

A Tiny New Chip Promises Internet 400 Times Faster Than Google Fiber - Gizmodo

 
 

A Tiny New Chip Promises Internet 400 Times Faster Than Google Fiber
 
 
Fast internet is fast. Google Fiber's gigabit connections? That's like driving a sports car compared to the go-cart-speed connection that's probably in your house. But new technology from IBM opens the door for connections that are beyond fast. Comparatively, it's like flying a fighter jet.
IBM researchers in Switzerland just unveiled the prototype for an energy efficient analog-to-digital converter (ADC) that enables connections as fast as 400 gigabits per second. That's 400 times faster than Google Fiber and about 5,000 times faster than the average U.S. connection. That's fast enough to download a two-hour-long, 4K ultra high definition movie in mere seconds. In short, that's incomprehensibly fast.
The ADC chip itself was actually built for loftier purposes than downloading episodes of Planet Earth, though. It's actually bound for the Square Kilometer Array in Australia and South Africa to help us peer hundreds of millions of light years into space, hopefully to give us a better idea of what the universe was like around the time of the Big Bang. This massive radio telescope will devour data, too. It's expected to gather over an exabyte every day when it's finished in 2024. That's over 100 billion gigabytes.
Believe it or not, 400 gigabit isn't even the fastest connection the world has seen. For that you'll have to go to the United Kingdom where researchers recently developed 1.4 terabit internet using commercial-grade hardware. That's warp speed. [ZDNet]
 
Image via IBM

6.8 million uninsured African Americans have new options for affordable health coverage - HHS

FOR IMMEDIATE RELEASE                     
February 3, 2014

Article link: http://www.hhs.gov/news/press/2014pres/02/20140203c.html

Statement by Secretary Kathleen Sebelius on African American History Month 

Today, we celebrate the beginning of African American History Month, a time for all Americans to recognize the countless contributions African Americans have made to our nation, including major advances in scientific research and public health.
During African American History Month, we draw inspiration from the courage of trailblazers like Dr. Rebecca Lee Crumpler, the first African-American woman in our nation’s history to receive a M.D. degree. In the face of seemingly insurmountable odds, Crumpler overcame the deeply entrenched discrimination of her time and in 1864 graduated from New England Medical College.
We also honor the legacy of innovators like Dr. George Washington Carver, who earned global recognition in the early 20th century for his groundbreaking research in the fields of agriculture and nutrition. A brilliant scientist, Dr. Carver used his skills to help the most vulnerable in society, educating poor farmers on ways to cultivate alternative crops that would yield more abundant and nutritious harvests.
This year, we will commemorate the 50th anniversary of the signing of the Civil Rights Act of 1964, a critical turning point in the fight against racial segregation and discrimination.  As we reflect on how far we have come, we also recognize that there is much work to do.
This administration has made reducing the long standing disparities in health care in the African American community a top priority. African Americans suffer from higher rates of a range of illnesses as compared to the general population, yet are 55 percent more likely to be uninsured than white Americans.
A critical step toward improving the health of communities of color is expanding access to affordable health coverage, and that’s what the Affordable Care Act does. Through the Health Insurance Marketplace, 6.8 million uninsured African Americans have new options for affordable health coverage that covers a range of benefits, including important preventive services with no out-of-pocket costs.
According to a recent HHS study, six out of 10 uninsured African Americans are currently eligible for Medicaid, the Children’s Health Program (CHIP) or financial assistance to purchase private coverage through the Health Insurance Marketplace. But, if all states took advantage of new opportunities to expand Medicaid coverage under the law, 95 percent of uninsured African Americans would be eligible for Medicaid, CHIP or financial assistance to buy Marketplace coverage.
As outlined in the HHS Action Plan to Reduce Racial and Ethnic Health Disparities, we are committed to continuously assessing the impact of all policies and programs on racial and ethnic health disparities.
Today, we renew our pledge to ensure that every child in this country has the chance to live a healthy life and reach their full potential. Please join us in our efforts to improve the lives of millions of Americans by expanding access to health care and reducing health disparities.

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Last revised: February 3, 2014

Monday, February 3, 2014

HHS strengthens patients’ right to access lab test reports - HHS

FOR IMMEDIATE RELEASE
February 3, 2014
Contact: HHS Press Office
202-690-6343

HHS strengthens patients’ right to access lab test reports

Article link: http://www.hhs.gov/news/press/2014pres/02/20140203a.html#.Uu_G3xCcggM.twitter

As part of an ongoing effort to empower patients to be informed partners with their health care providers, the Department of Health and Human Services (HHS) has taken action to give patients or a person designated by the patient a means of direct access to the patient’s completed laboratory test reports.
“The right to access personal health information is a cornerstone of the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule,” said Secretary Kathleen Sebelius. “Information like lab results can empower patients to track their health progress, make decisions with their health care professionals, and adhere to important treatment plans.”
The final rule announced today amends the Clinical Laboratory Improvement Amendments of 1988 (CLIA) regulations to allow laboratories to give a patient, or a person designated by the patient, his or her “personal representative,” access to the patient’s completed test reports on the patient’s or patient’s personal representative’s request. At the same time, the final rule eliminates the exception under the Health Insurance Portability and Accountability Act of 1996 (HIPAA) Privacy Rule to an individual’s right to access his or her protected health information when it is held by a CLIA-certified or CLIA-exempt laboratory. While patients can continue to get access to their laboratory test reports from their doctors, these changes give patients a new option to obtain their test reports directly from the laboratory while maintaining strong protections for patients’ privacy.
The final rule is issued jointly by three agencies within HHS: the Centers for Medicare & Medicaid Services (CMS), which is generally responsible for laboratory regulation under CLIA, the Centers for Disease Control and Prevention (CDC), which provides scientific and technical advice to CMS related to CLIA, and the Office for Civil Rights (OCR), which is responsible for enforcing the HIPAA Privacy Rule.
Under the HIPAA Privacy Rule, patients, patient’s designees and patient’s personal representatives can see or be given a copy of the patient’s protected health information, including an electronic copy, with limited exceptions. In doing so, the patient or the personal representative may have to put their request in writing and pay for the cost of copying, mailing, or electronic media on which the information is provided, such as a CD or flash drive. In most cases, copies must be given to the patient within 30 days of his or her request.
The final rule is available for review at: http://www.federalregister.gov.

###



Note: All HHS press releases, fact sheets and other news materials are available at http://www.hhs.gov/news.
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Follow HHS Secretary Kathleen Sebelius on Twitter @Sebelius exit disclaimer icon.
Last revised: February 3, 2014